Rare Disease Day: becoming not-so-rare with RWE

Rare Disease Day approaches, and within recent years, rare diseases have started to become not-so-rare. By creating awareness about these diseases, it is hoped that stakeholders in pharma, manufacturers, healthcare practitioners and more center their efforts around finding treatments for these diseases. Days such as Rare Disease Day (28 February) provide the opportunity to reflect on what the healthcare and research industries have done so far to improve the lives of those with rare diseases.  Rare Disease Day aims to create awareness about the various rare diseases with the aim of promoting access to diagnosis and therapies. The awareness day...