A Fireside chat with Jean-Christophe Novelli on understanding the human impact of rare diseases: my family’s story

In this Fireside chat with Jean-Christophe Novelli, famous chef, author and restauranteur, we discuss the human impact of rare diseases from Jean-Christophe's perspective. As the father of little Valentino – who previously suffered with neuroblastoma, a rare cancer of the neuroblasts that most often affects infants – Jean-Christophe gives us an intimate glance at the main challenges facing families dealing with rare diseases, advice he would give to other parents and the importance of listening to the patient experience when looking at developing treatments of rare diseases. Biography Jean-Christophe Novelli is a multi-Michelin star and 5/5 AA Rosette winning chef,...