Online tool for gathering real-world data could help fill knowledge gaps in COVID-19 management

Written by Ilana Landau, Editor
COVID-19 Immunology and infectious diseases News Real-world evidence Stakeholder engagement

The Alliance for Clinical Research Excellence and Safety (ACRES; MA, USA) is distributing an online tool, designed by Veracuity (PA, USA), for generating real-world evidence to help fill critical knowledge gaps in the management of individuals with COVID-19.

The Alliance for Clinical Research Excellence and Safety (ACRES; MA, USA) is distributing an online tool, designed by Veracuity(PA, USA), for capturing and analyzing real-world data on the management of individuals with COVID-19. The data will be utilized to generate real-world evidence that could help fill critical knowledge gaps in COVID-19 management.

The user-friendly, online survey tool will collate de-identified patient data on predisposing conditions, treatment strategies, outcomes and side effects experienced by individuals with COVID-19; the evidence generated from these data could help enhance understanding of the COVID-19 pandemic, including risk factor identification, triage, treatment management and outcome predictors.

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“Our survey tool was designed with the care providers in mind, to make it as easy as possible to capture the value of their front-line experience to better inform our efforts to confront this viral pandemic,” explained survey tool co-designer Veronika Valdova (Veracuity).

The tool, which has undergone review and validation by a focus group of physicians actively caring for COVID-19 patients, requires minimal text entry by healthcare providers and utilizes established rating scales that are routinely used in clinical practice, making it quick and easy to use.

In a time of crisis like this, the information that can be gleaned from real-world experience can help us find our way, to ask the right questions, and learn from experience — not to replace science, but to better inform its pursuit,”

— Greg Koski, President and CEO of ACRES.

Currently, there are no medications approved for the causal treatment of COVID-19. In the absence of evidence from randomized controlled trials concerning the effectiveness of such treatment strategies, real-world evidence relating to their use and clinical effectiveness could be invaluable to allow for the rapid adjustment of clinical protocols as more data become available.

Further, such real-world evidence could help improve patient care by alerting healthcare providers to the harmful effects of experimental therapies as early as possible, again in the absence of clinical trial data.

Source:

https://www.acresglobal.net/acres-and-veracuity-launch-covid-19-real-world-evidence-initiative/; https://www.prweb.com/releases/acres_and_veracuity_launch_covid_19_real_world_evidence_initiative/prweb17058223.htm