Understanding multiple sclerosis in the real world: insights from the UK MS Register

“Everyone living with MS has a unique insight into what it’s like to live with the condition. One person sharing information about their MS could benefit someone else on the other side of the world.” MS International Federation, February 2024 Patient registries collecting standardized health data and patient-reported outcomes are key tools in healthcare and medical research, providing a centralized repository of real-world data (RWD) that can be used to track the natural history of diseases, monitor treatment outcomes, and facilitate research studies. Many international registries for multiple sclerosis (MS) are gathering a wide range of clinical and patient-reported data...