Spotlight: Patients as Stakeholders

The Evidence Base is delighted to present this ‘Patients as Stakeholders’ series of talks with expert speakers from diverse backgrounds all discussing the same question – how can we ensure that the patient voice heard in health care?

Join eight speakers in answering this critical question, as they share their professional and personal experiences in patient engagement, covering topics including market access, plain language summaries, supporting clinicians and much more.

• Patient / advocate engagement in market access – Ellen Coleman (VOZ Advisors, NY, USA)
• The power of the patient advocate – Fiona Copeland (PCD Support UK, UK)
• Rare diseases: then, now and in future – Alastair Kent (Independent patient advocate)
• A perspective on the future of patient engagement – Sheila Khawaja (World Alliance of Pituitary Organizations, Zeeland, The Netherlands)
• Advocacy in rare disease: supporting clinicians and driving medicine forward – Lucy McKay (Medics4RareDiseases, UK)
• Patient advocacy and the Open Pharma recommendations for plain language summaries of peer-reviewed medical journal publications – Adeline Rosenberg (Oxford PharmaGenesis, UK)
• RWE and patient recruitment – Maya Zlatanova (FindMeCure, Sofia, Bulgaria)
• Rare disease and the lessons learned from the COVID-19 pandemic – Rebecca Stewart (RareRevolution Magazine, UK)

Total length: 3h13m