Pooling real-world multiple sclerosis patient data on a European level: a true story of success

Christoph Thalheim reflects on the European Network of MS Registries project. This symposium paper, from Neurodegenerative Disease Management, is free to access exclusively for Evidence Base members.

Patient-based evidence is becoming increasingly important in budget-restricted healthcare systems as the information can help influence the direction of funds towards interventions that provide the most relevant outcomes for people living with a chronic disease. The European Network of MS Registries project, set up in 2011 by the European Multiple Sclerosis Platform (EMSP; Brussels, Belgium), has provided proof of concept that high quality MS data from previously unconnected sources can be integrated to inform research and improve patient outcomes.

In this symposium paper, Christoph Thalheim (European Multiple Sclerosis Platform) discusses the background to the Network, its development and what insights it has provided.

Read the article, exclusively free to access for Evidence Base members>>

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Neurodegenerative Disease Management

Journal, Future Medicine

Neurodegenerative Disease Management is a MEDLINE-indexed, peer-reviewed journal from the Future Science Group covering findings, analysis and commentary in the ongoing battle with this range of debilitating illnesses. The journal provides guidance to the multidisciplinary disease management community regarding the most effective treatment strategies and the implications of cutting-edge research as it emerges, covering all neurodegenerative diseases, including Alzheimer’s, Parkinson’s, Huntington’s, ALS and multiple sclerosis. A wide range of invited and unsolicited articles are considered, including original research, narrative and systematic reviews, study design papers and opinion pieces. The journal offers rapid and open access publishing options.
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