Privacy, security and compensation: what is expected from donating one’s genomic data?

Results from a nationally representative survey suggest that as individuals are made more aware of the commercial nature of genomic database companies, they may become more concerned by secure use of their data and expect greater compensation for sharing them. Researchers from Penn State University (PA, USA) and Cornell University (NY, USA) have conducted a nationally representative survey of the general public and observed that as individuals are made more aware of how their data may be used commercially by genomic database companies, they express greater concern over data security, privacy and may expect more compensation for donating their data....