Look behind the lecture: do registry and real-world data have places in healthcare decision-making?

Written by The Evidence Base

In this feature, Rebekah Angove (Patient Advocate Foundation, VA, USA) discusses her presentation from the Patient Registries, Real-World Evidence and HEOR meeting (27–28 January 2020; Miami, FL, USA) on the relevance of registry and real-world data to healthcare decision-making. Please could you introduce yourself and your organization? I am a health services researcher, leader in patient engagement and the Vice President for Patient Experience and Program Evaluation at the Patient Advocate Foundation (PAF; VA, USA). I draw from my expertise in patient engagement to design and manage a comprehensive evaluation and patient experience program. I lead efforts to identify patient...

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